Tuesday, February 23, 2010 4:26 PM, EST
Oh how I wish this treatment were available ANYWHERE else. There has been a lot of drama down here. [The doctor informed that the schedule has changed. Instead of being in NYC for week of scans and a week of therapy, Ally is to return for the therapy the week after next!]
The bottom line is Auntie Kelly, Ally and I will be headed back to New Hampshire on Friday morning. Ally and a parent (yet to be finalized which one of us gets to make the glorious trip back to NYC) will be headed back here on March 7th for the week.
Yesterday was a very upsetting day, but today has gone better. Of course Ally is doing great, as she doesn't really understand what is going on. We have an MIBG scan tomorrow and bone marrow and CT on Thursday.
It is rainy and cold here, and now Auntie Kelly and I have 3 days left to eat 2 weeks worth of groceries!