Thursday, September 23, 2010 9:53 AM, EDT    
   
Surprise, surprise, the NYC office never called me back.  So, I called them.
It looks like we are on for 3f8 treatment the week of October 4th.   Mommy will be going with Ally, and possibly a special guest will be  going with us.
There are about 4 million little details to go along with going to NYC.   The biggest of which is scans.  Ally gets scans about every 3 months.   These include: MIBG, CT, Quad Bone Marrows, and a 4 hour urine.  Ally's  home oncologists are away at a conference this week, so she is only  getting the MIBG and CT.  The folks down in NYC are particular about  having ALL the scans completed.  So, I am now waiting for another call  back about those.  The urine shouldn't be a problem.  I am hoping we can  just do that one of the 3f8 days (since we are there for over 4 hours  anyway).  The Bone Marrow is going to be the tricky one.  Even if we  went down the Friday before they would not have results for the  following week.  So, we are hoping that as long as her scans are clear  on Friday, they will be able to hold the bone marrow until Columbus Day  (and hopefully that is a working holiday).  There are about 3,999,999  other little things we have to do, but the urine and bone marrow may  mess things up.  Please pray that the NYC team will be flexible and  empathetic, and that things will work out well.  Also we need big  prayers for clear scans, the 3f8 treatment means nothing if those scans  are not clear!!!
I will be sure to update again when we hear scan results (which may not be until next Monday).