Monday, June 14, 2010 8:45 AM, EDT
Ally remained fever free for the rest of the weekend. She and Daddy had a good train ride to NYC. Daddy said it is super hot in New York. When they got to the Ronald McDonald House they found that the playroom is closed the whole time they are there, due to renovations. Hopefully it will be nice enough that they will be able to go to the park that is a couple of blocks away. Daddy also plans to hang around the hospital so Ally can play in that playroom.
This morning they wanted Ally at the hospital for 7:00 AM to get her CT contrast dye, with her CT scan being at 10:00. Daddy and Ally finally got the dye at 8:00, and they were told the scan would be "delayed"....no actual time given to them....I am so glad Daddy (the level headed one of us) is there to go with the flow....I probably would have caused a scene.
Tomorrow is the most important scan, the MIBG. Please pray that it is clear.